Preferred Label : Pediatric Quality of Life Neuromuscular Module Version 3.0 Parent Report for Young
Adults Report Questionnaire;
NCIt synonyms : PedsQL Neuromuscular Module Version 3.0 Parent Report for Young Adults Report;
NCIt related terms : PEDSQL NEUROMUSCULAR MODULE V3 YOUNG ADULT PARENT REPORT; PQL02;
NCIt definition : A 25-item disease specific complement to the Pediatric Quality of Life Inventory instrument
published by Sarah Davis et al. in 2010 that utilizes a 5-point Likert scale to measure
three dimensions of parent reported health related quality of life over the past month
in individuals ages 18 to 25 years with neuromuscular disorders.;
Alternative definition : CDISC: Pediatric Quality of Life (PedsQL) Neuromuscular Module Version 3 Young Adult
Parent Report (Copyright 1998 JW Varni, Ph.D. Iannaccone, S.T., Hynan, L.S., Morton,
A., Buchanan, R., Limbers, C.A., Varni, J.W., the AmSMART Group (2009). The PedsQL
in pediatric patients with Spinal Muscular Atrophy: Feasibility, reliability, and
validity of the Pediatric Quality of Life Inventory Generic Core Scales and Neuromuscular
Module. Neuromuscular Disorders, 19, 805-812. Davis, S.E., Hynan, L.S., Limbers, C.A.,
Andersen, C.M., Greene, M.C., Varni, J.W., Iannaccone, S.T. (2010). The PedsQL in
pediatric patients with Duchenne Muscular Dystrophy: Feasibility, reliability, and
validity of the Pediatric Quality of Life Inventory Neuromuscular Module and Generic
Core Scales. Journal of Clinical Neuromuscular Disease, 11, 97-109).;
NCI Metathesaurus CUI : CL525812;
Origin ID : C138352;
UMLS CUI : C4527581;
Semantic type(s)
- concept_is_in_subset
