Preferred Label : Hemophilia Quality of Life Questionnaire Adult Version;
NCIt synonyms : Haem-A-QoL;
NCIt related terms : Haemophilia Quality of Life Questionnaire for Adults; Haemophilia Quality of Life Questionnaire for Adults (Haem-A-QoL); HM09;
NCIt definition : A standardized rating scale developed by Mackensen et al in 2005, which is used to
measure the physical and emotional impacts on quality of life in adults with hemophilia.
The questionnaire contains 46 items which are divided into 10 dimensions: physical
health, feelings, self-perception, sports and leisure, work and school, coping, treatment,
future, family planning and relationships/partners.;
Alternative definition : CDISC: Hemophilia Quality of Life Questionnaire Adult Version (Haem-A-QoL) (The Haemo-QoL
questionnaire-set is a joint property of the Haemo-QoL Study Centre at the University
of Hamburg, Germany and Bayer Biological Products, Research Triangle Park, North Carolina,
USA. Development of new translations, modified versions or any other derivatives -
such as electronic versions - are not permitted without special permission and involvement
of the Haemo-QoL Study Group; Von Mackensen S, Scalone L, Ravera S, Mantovani L, Gringeri
A, The COCHE Study Group. Assessment of health-related quality of life in patients
with Hemophilia with the newly developed Hemophilia-specific instrument (Haem-A-QoL).
Value Health 2005; 8:A127).;
NCI Metathesaurus CUI : CL951396;
Origin ID : C122381;
UMLS CUI : C4054789;
Semantic type(s)
- concept_is_in_subset
