" /> PhenX - social networks protocol 211101:-:Pt: Patient:-:PhenX - CISMeF





Preferred Label : PhenX - social networks protocol 211101:-:Pt: Patient:-:PhenX;

LOINC status : TRIAL;

LOINC long common name : PhenX - social networks protocol 211101;

LOINC short name : Social networks proto;

LOINC description : The Important and Health Matters Social Network Battery is an interviewer-administered survey that captures the names of all individuals within a respondent's social network and the relationship between these individuals. The high-burden protocol is a semi-structured interview that has both open-ended and close-ended questions. On average, it takes 15-20 minutes to complete because individuals usually provide 4-7 names. Note that this measure yields potentially identifiable data about the participant(s). The investigator should refer to Health Insurance Portability and Accountability Act (HIPAA) rules regarding potentially identifiable data, which will provide guidance on who may access the data and how they may do so. Given HIPAA concerns, researchers should consider what level of identification is needed on network ties. In one-time data collections, interviewers can use first names or initials. However, in panel studies, these approaches run into trouble because respondents tend not to remember the nicknames, initials, and pseudonyms they gave in earlier waves. It is essential that the interviewer ask for all names and list them on the interview form (or suggested separate Network Recording Form) before asking and coding items 2-11 on the form.;

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28/04/2025


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